Aims:
The aim of this study was to explore experiences and preferences of cancer patients undergoing radiation therapy in Australia, Japan and Vietnam regarding their treatment decision making. We also investigated whether a significant other was present when they received their treatment information and patient satisfaction with the treatment decision.
Methods:
Participants were ambulatory adult cancer patients undergoing radiation therapy at one clinic in Australia, two university hospitals in Japan and one oncology hospital in VietnamParticipants were sampled consecutively and asked to complete a self-administered, pen and paper survey in the clinic (Australia) or at home (Japan). In Vietnam, patients answered via a face-to-face interview or pen-and-paper survey.The survey included questionnaires about treatment decision making and patient sociodemographic factors.
Results:
The proportion of Australian patients (n=285) who experienced, compared to had a preference for, shared, passive, and active treatment decision making was: 64% vs 80%, 28% vs 17% and 8% vs 3.6% respectively. Amongst Japanese patients (n=263), these proportions were 70% vs 84%, 20% vs 12%, and 10% vs 3.8%. For Vietnamese patients (n=300), they were 83% vs 89%, 11% vs 10%, and 5% vs 1% respectively. 83% (Australia), 72% (Japan) and 96% (Vietnam) of patients attended with significant other.95% Australian and 75% Japanese patients were satisfied with their treatment decision while only 0.3% Vietnamese indicated they would make the same treatment decision if they had the chance to make the decision again.
Conclusion:
Majority of patients both in western and eastern culture experienced and preferred shared decision making. Most patients attended with significant others. But satisfaction with the treatment decision varied across countries, and was particularly low in Vietnam. We need to explore factors associated with treatment satisfaction.